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Center for HIV Law and Policy: What We Do Now: Data Privacy and Public Health in the Authoritarian Police State

EPIC – Electronic Privacy Information Center · · International · Privacy Law

The Center for HIV Law and Policy has published guidance on protecting data privacy and public health in what it describes as an authoritarian policing environment. The piece, flagged by EPIC, addresses how people living with HIV and advocates can navigate increased surveillance and data risks.

Why this matters: Health data is some of the most personal information you have. For people with HIV, exposure of that data has never been a small risk — it can affect jobs, custody, immigration status, and physical safety. When the political environment hardens, the databases that public health systems built to help people can become tools used against them. This is a practical problem. If people stop seeking testing or treatment because they do not trust who can see their records, the public health consequences are real. The question is who controls that data and what legal protection actually remains.

Who should care: General readers · Privacy officers · Policy

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