MyChart said I could opt out of sharing my health data. Figuring out how was maddening
A user of MyChart, the widely used patient portal, found that while the platform offered an opt-out from health data sharing, actually completing that opt-out was a confusing and frustrating process.
Why this matters: Health data is about as sensitive as it gets. MyChart is used by tens of millions of patients across hospital systems in the United States. Offering an opt-out that is genuinely hard to find or complete is not much of an opt-out. It is a checkbox that protects the company more than the patient. If a platform collects your diagnosis, your prescriptions, and your visit history, finding the off switch should not require determination and a tolerance for bureaucratic mazes.
Who should care: Healthcare professionals · Privacy officers · Compliance
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