NIH seeks to engage patients as it scales use of AI with Bio Genesis Mission
The National Institutes of Health is expanding its use of artificial intelligence through an initiative called the Bio Genesis Mission, announced in July, and is now working to determine how it will coordinate with other federal agencies and involve patients in that effort.
Why this matters: When a federal health agency scales AI across its work, the data at stake is not abstract. It is medical records, research data, and personal health information from patients who often had no choice but to share it. Saying you want to 'engage patients' is easy. The harder part is what that actually means — whether people get real say in how their data is used, or whether engagement is just a box checked on the way to a decision already made. The collaboration details have not been worked out yet, which is exactly when oversight matters most.
Who should care: General readers · AI governance · Policy
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